Go here to read letters from 100 other people with parotid gland tumors. Ask Questions.
170 people have
provided answers to pre-op questions. Bench mark yourself against
them. Age, gender, health, etc.
Read what they have to say after the operation.
|The links below relate to
parotid tumors and the parotid surgical procedure called a parotidectomy.
I found many of these links in search of information for my own use both
before and after my own surgery for the removal of a benign parotid tumor
called pleomorphic adenoma.
The Links in the gray box on the left relate to my own experiences. You will also find a Bulletin Board there where you can exchange correspondence with myself as well as others. More than 2,000 messages with great information have been posted there. You may find comfort in being able to talk to others who have experienced what you are going through.
Warning! Don't try to diagnose yourself. Have your family doctor refer you to an ENT (Ear Nose Throat) office.
Youtube Video - First it explains the facial nerve (4 minutes) and then it shows an actual surgery with a nerve monitor being used.
Andy's Site - Andy's web site describes his experiences with the removal of a cyst as well as a ????
Description Of Parotidectomy and Artistic Renderings - This site gets good reviews from the people on the forum. It is preferred over the next two sites below because of the artistic renderings as opposed to the actual photos. Thanks to Deborah for submitting the site.
Gross Surgery Photo's - Good description of the surgery by a doctor but you need a strong stomach.
Great Description of FNA Procedure - Provided by Tim
Benign mixed tumor & Metastasizing benign mixed tumors (This link from Puter)
Parotid Stone and Other Parotid Issues
Treatment for Stones
Jackson-Pratt Drain - This link describes the drain that is sometimes used to drain the wound.
Facebook - Parotid People - There is a facebook page called "parotid people". This is another good place to exchange information about parotid gland problems and surgery
Cat Scratch Fever - Good idea to check out these links. A Few readers have reported being diagnosed with a tumor when it was actually Cat Scratch Fever
Cancer of the Parotid Gland
Links On Salivary Gland Cancer - Roxanne provided this
Information on malignant parotid tumors and testing - submitted by Janeen. Use the e-medicine search for other great information on parotid tumors as well.
Acinic Cell Carcinoma - This site is dedicated to ACC. It is maintained by Ed Stroke, a 20 year ACC patient. Ed has spent a great deal of time doing research on the subject.
PubMed - Abstracts, Abstracts, Abstracts.......This site has 120 of them on Parotid Gland Tumors and Treatments. Here is how it works. From the abstract this link takes you to, change the DISPLAY to "Related Articles". Then press the display button and you will see all the other abstracts.
E-Medicine - Description of various cancers of the parotid gland. Includes information on treatments as well as "reconstruction" to fill in the dent. Plastic Surgery, University of Florida.
Parotid Mucoepidermoid Carcinoma - A daughters account of her fathers fight with cancer. A sad story. Don't go there unless you are prepared.
Stats on Mucoepidermoid Carcinoma Grading - link provided by greg w
Story From An Adenoid Cystic Carcinoma Patient In The U.K. - Very Well Written, Happy Ending
Information on Radiation Treatment to Head and Neck
University of Florida - I visited here after seeing two other Radiation Oncology Hospitals. The University of Florida seems to have a great program.
IMRT - Submitted by Bill in Atlanta
Bulletin Board Visitor's Who Have Reported Recurrences or Radiation Treatments
Julie(4+RT), Carol, Lotti(3), Linda, Dwight(2), Glamaris Gonzalez(3 +RT), Susan H (RT), Ruth (4), Jennifer (4), Diana (4), Vickie (3), mbs (4), Bill (1+IMRT in Atlanta), Brenda(2), Rebecca (2), Liz (2 +RT, 14yrs), Patricia (RT), Tara (9), alice delong (6), Vickie (2), Chris G (RT), Mandy 3 (RT), Carrie (RT), Gramps (RT), Bill Robins (RT), Ken (3), Jennifer (3) Lucinda Cockrell(3), Mary E (3)
RT = Radiation Treatments, (#) = Number of Recurrences